Parent Project Muscular Dystrophy

Louisville

Parent Project Muscular Dystrophy’s mission is to end Duchenne. With support from ICAP, the charity plan to expand its research programme, promote advocacy, optimise its care services and raise awareness of this debilitating disease.

Charity Overview

Duchenne Muscular Dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 3,500 live male births. Each year there are about 20,000 new cases diagnosed around the world. Parent Project Muscular Dystrophy is leading the fight to end Duchenne.

The Duchenne gene is found on the X-chromosome, therefore primarily affects boys; however, it occurs across all races and cultures. The charity aims to accelerate research, raise awareness of the condition, demand optimal care for all young men and educate the global community in the fight to end Duchenne.