The Parent Project

Charity Overview

Duchenne Muscular Dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births. Each year there are about 20,000 new cases diagnosed around the world. Parent Project Muscular Dystrophy are leading the fight to end Duchenne.

The Duchenne gene is found on the X-chromosome, therefore primarily affects boys; however, it occurs across all races and cultures. The charity aim to accelerate research, raise awareness of the condition of the US government, demand optimal care for all young men and educate the global community in the fight to end Duchenne.